The family: in the spiral of rare diseases
Sep 2024 · Fondation Ipsen BookLab
4.6star
11 reviewsreport
Ebook
192
Pages
Bubble Zoom
family_home
Eligible
info
reportRatings and reviews aren’t verified Learn More
About this ebook
As soon as her son Enzo was born, Cindy "knew" that something was wrong. Months of isolation, mistrust and misunderstanding followed... a period of diagnostic wandering typical of rare diseases.
Cindy, Lola and Enzo tell their stories of how a rare disease is a daily struggle for families. It's a battle in which each one of them fights his or her own battle... as mother, sister and patient.
"In the world of rare diseases, this manga becomes a beacon of hope. Through its stories, it highlights the challenges, resilience and victories of families affected by myasthenia gravis. A powerful testament to the strength of the rare disease community. We are grateful to Fondation Ipsen for its essential support."
Michael Wilbur
Director of Operations, EURORDIS-Rare Diseases Europe
"This is the story of three heroes: Enzo, his sister and his mother. Through them, we see courage, strength, solidarity and eternal love."
James A. Levine
MD, PhD, Professor, Fondation Ipsen, President
ABOUT THE AUTHOR
At the age of 20, Céline Gaudet decided to transform her passion for manga into a profession. She left Montreal to take courses under the direction of a Japanese manga teacher, at AAA-Ecole de Manga. She writes under the pseudonym Reptilian.
Cindy, Lola and Enzo tell their stories of how a rare disease is a daily struggle for families. It's a battle in which each one of them fights his or her own battle... as mother, sister and patient.
"In the world of rare diseases, this manga becomes a beacon of hope. Through its stories, it highlights the challenges, resilience and victories of families affected by myasthenia gravis. A powerful testament to the strength of the rare disease community. We are grateful to Fondation Ipsen for its essential support."
Michael Wilbur
Director of Operations, EURORDIS-Rare Diseases Europe
"This is the story of three heroes: Enzo, his sister and his mother. Through them, we see courage, strength, solidarity and eternal love."
James A. Levine
MD, PhD, Professor, Fondation Ipsen, President
ABOUT THE AUTHOR
At the age of 20, Céline Gaudet decided to transform her passion for manga into a profession. She left Montreal to take courses under the direction of a Japanese manga teacher, at AAA-Ecole de Manga. She writes under the pseudonym Reptilian.
Ratings and reviews
4.6
11 reviews
Dashrath Dongare
- Flag inappropriate
October 1, 2024
Pinned on ook op lol ok thap kik pop pl.ooi ko po pp666nks o loop ko pkkok
Dhiren Yadav
- Flag inappropriate
September 24, 2024
.k l .kllklllaw AA ll AA .l.,nxol
Bildora Sangma
- Flag inappropriate
- Show review history
September 29, 2024
I like your not book
Rate this ebook
Tell us what you think.
Reading information
Smartphones and tablets
Install the Google Play Books app for Android and iPad/iPhone. It syncs automatically with your account and allows you to read online or offline wherever you are.
Laptops and computers
You can listen to audiobooks purchased on Google Play using your computer's web browser.
eReaders and other devices
To read on e-ink devices like Kobo eReaders, you'll need to download a file and transfer it to your device. Follow the detailed Help Center instructions to transfer the files to supported eReaders.
